Diseases Covered

Nephropathic Cystinosis

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Program Status

open

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We encourage you to apply for assistance; see the qualifications below.
 

Assistance Amount

$ 10,000

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Eligibility Criteria

  • Patient must be diagnosed with a covered disease and program must be accepting enrollments
  • Patient must have a valid Social Security number to apply for assistance and receive treatment in the United States
  • Patient must be seeking assistance for a prescribed medication that is FDA approved to treat the covered diagnosis
  • Patient must have valid medical insurance with at least 50% coverage of the cost of the treatment, excluding deductibles
  • Patient income level must be at or below 500% of the Federal Poverty Level (FPL)

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  • Cystaran
  • Cystagon
  • Procysbi

Cystinosis is a condition characterized by accumulation of the amino acid cystine (a building block of proteins) within cells. Excess cystine damages cells and often forms crystals that can build up and cause problems in many organs and tissues. (Source: NIH; US National Library of Medicine)

Medications Covered

  • Cystaran
  • Cystagon
  • Procysbi

Disease Description

Cystinosis is a condition characterized by accumulation of the amino acid cystine (a building block of proteins) within cells. Excess cystine damages cells and often forms crystals that can build up and cause problems in many organs and tissues. (Source: NIH; US National Library of Medicine)

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