Diseases Covered

Urea Cycle Disease

Includes: Hyperammonemia

Program Status

closed

Applications or renewals for this condition are currently unavailable. The organizations below may offer funding for this condition.

Copay Assistance Organizations

These sister charities are also dedicated to helping people afford life-changing treatments and medications.

Support Organizations

These organizations do not offer co-pay assistance, but they offer valuable information and support.

National Urea Cycle Disorders Foundation

Urea Cycle Disorders Consortium

Eligibility Criteria

  • Patient must have valid Social Security number to apply for assistance and receive treatment in the United States.
  • Patient income must be at or below 500% of the Federal Poverty Level (FPL.)
  • Patient is required to have insurance coverage which covers at least 50% of the cost of treatment.
  • Patient must be diagnosed with a covered disease and program must be accepting enrollments.
  • Patient must be seeking assistance for a prescribed medication that is FDA approved to treat the covered diagnosis.

Medications Covered

  • Buphenyl
  • Carbaglu
  • Carglumic Acid
  • Olpruva
  • Pheburane
  • Phenylbutyrate
  • Ravicti
  • Sodium Benzoate
  • Sodium Phenylbutyrate

Disease Description

Hereditary urea cycle abnormality is an inherited condition. It can cause problems with the removal of waste from the body in the urine. People with a urea cycle disorder are missing a gene that makes the enzymes needed to break down ammonia in the body. (Source: NIH; US National Library of Medicine)